tag:blogger.com,1999:blog-435799301890791935.post4561390093151537471..comments2023-09-13T02:16:59.799-07:00Comments on A Legacy of Love: Xander's Ear Infection # 3 & 4Nicole Lovehttp://www.blogger.com/profile/03078930846323798559noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-435799301890791935.post-80444812654293958772010-12-15T20:30:02.775-08:002010-12-15T20:30:02.775-08:00Hi, my name is Amy and I was led to your blog by m...Hi, my name is Amy and I was led to your blog by my therapist at Kids on the Move. I just recently learned of Bardet-Biedle Sydrome and I am very interesting in learning more. I have 2 kids who I think may have this syndrome. I am not sure but I really want to look into it more. My biggest question right now is where do I go to get started? Should I make an appointment with a geneticist? My primary care doctor didn't know anything about the syndrome so I know I need to start somewhere else. If you don't mind giving me some advice on where to start, I would appreciate it so much! You can contact me at arnesenamy09@gmail.com. Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-435799301890791935.post-33267041562372775072010-12-13T20:47:07.212-08:002010-12-13T20:47:07.212-08:00He was so happy at the family party. He was a lit...He was so happy at the family party. He was a little darling. So sorry he is so sick. It was great seeing you!Curtis, Joanne and Familyhttps://www.blogger.com/profile/18365649104987114424noreply@blogger.com