A friend from the Laurence Moon Bardet-Biedl Society
on facebook posted this poem. It is our take (BBS) on the poem
Welcome to Holland.
A mother of a child with bardet-biedl syndrome wrote it.
This is so meaningful and beauitful to me and touches my heart because it is as if this poem is describing my children and my life. My very special children are amazing and beauitful. I truly wish that we could all see the world through their eyes. Who knows? Maybe one day they can describe it to me. For Savannah, I sometimes wonder if that day might not be until the next life. I am wishing and wanting that day to come with all of my hearts desire. When she can look at me with her beauitful blue eyes and tell me how her day was and about her hopes and dreams. I want her to be able to tell me why she cries everyday when she gets home from school.I want her to be able to tell me what is making her sad. One of my friends talked about how Heavenly Father answers our hearts inner most desires, (unsaid prayers) When we witness our special children accomplishing something small but very amazing for them. Like when Savannah first asked for something using a full sentence! It just makes my heart melt. I want to jump up and down and smother her in hugs and kisses!
Today, when Savannah came home form school, when she was crying, I was holding her and I tried to ask her how her day was, just like I do every day, hoping for an answer just like every other time. Then I asked her If she played with her friends at school? No answer. What are you're friends at schools names? No answer. I asked her two more times. "Savannah." What's your teacher's name? The second time I asked I answered for her and she said mommy.What did you learn today? She started crying again. I couldn't even get her to look at me. I was trying so hard to get something. I wanted her to talk to me so badly but I just felt so helpless, like there is an invisible wall between her and me. But, when I read this poem it reminded me that Savannah's world is beauitful, and I love her just the way she is! She gets so excited when she sees a rock, a flower, or letters! I love it when she says, "Oh my goodness!" or " Oh man!" It is adorable, and when she does look at me! I love to just look at her back and soak that rare moment in! I love how she makes us give her "many'" kisses when we put her to bed! I love my two beauitful children and I am so grateful for them and
to be their mother.
A friend from the Laurence Moon Bardet-Biedl Society
on facebook posted this poem. It is our take (BBS) on the poem
Welcome to Holland.A mother of a child with bardet-biedl syndrome wrote it.
This is so meaningful and beauitful to me and touches my heart because it is as if this poem is describing my children and my life. My very special children are amazing and beauitful. I truly wish that we could all see the world through their eyes. Who knows? Maybe one day they can describe it to me. For Savannah, I sometimes wonder if that day might not be until the next life. I am wishing and wanting that day to come with all of my hearts desire. When she can look at me with her beauitful blue eyes and tell me how her day was and about her hopes and dreams. I want her to be able to tell me why she cries everyday when she gets home from school.I want her to be able to tell me what is making her sad. One of my friends talked about how Heavenly Father answers our hearts inner most desires, (unsaid prayers) When we witness our special children accomplishing something small but very amazing for them. Like when Savannah first asked for something using a full sentence! It just makes my heart melt. I want to jump up and down and smother her in hugs and kisses!Today, when Savannah came home form school, when she was crying, I was holding her and I tried to ask her how her day was, just like I do every day, hoping for an answer just like every other time. Then I asked her If she played with her friends at school? No answer. What are you're friends at schools names? No answer. I asked her two more times. "Savannah." What's your teacher's name? The second time I asked I answered for her and she said mommy.What did you learn today? She started crying again. I couldn't even get her to look at me. I was trying so hard to get something. I wanted her to talk to me so badly but I just felt so helpless, like there is an invisible wall between her and me. But, when I read this poem it reminded me that Savannah's world is beauitful, and I love her just the way she is! She gets so excited when she sees a rock, a flower, or letters! I love it when she says, "Oh my goodness!" or " Oh man!" It is adorable, and when she does look at me! I love to just look at her back and soak that rare moment in! I love how she makes us give her "many'" kisses when we put her to bed! I love my two beauitful children and I am so grateful for them and
Love it! Amazing moms are the ones that get the amazing kids, you know. :)
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