Thursday, September 9, 2010
Good News and Bad News
The good news is that the doctors are looking at everything to find out what is wrong with Xander. Xander has gained back the three ounces that he had lost. He's now 12.8 pounds!The bad news is that when the G. I. doctor looked at Xander, she noticed that his rectum was very small. She had the Pediatric Surgeon come in and look at him. He tore it. It was the saddest thing ever. I felt so bad for Xander. No one should ever have to go through that. There was so much blood. Xander was crying harder than I've ever seen him. It's so hard watching your child in pain.He said that Xander has Anus Stenosis.He has to go back to the surgeon on Wednesday so he can try to tare and stretch it more, and hopefully he won't need surgery for it. He has to go to a new formal called Neocate. Xander has GERD reflex disease. The formula is for infants who are Hypoallergenic.They are going to have him get an x-ray of his small intestines. I have to make the appointment for that. They are going to have us go back to the Pediatric Gastroenterology so they can do a UGI barium on Wednesday also. They want to see if his intestines are in the right spot and if the openings to and from his stomach are big enough. People with BBS can also have Hirschsprung disease. I really hope he doesn't. Next week Xander is also going to radiology and urology for his kidneys. We'll be at Primary children s a lot next week. Savannah is also being tested for autism on Monday. It's going to be a very busy week.