Mother's Day is very hard for me but last Mother's Day I found a way to look at it differently. I love all of these post I have been reading that recognizes all of the beautiful mothers but they left out one kind of mother. When I became a mother 8 years ago I was introduced to a world of special needs. From the first hour, I found out that my precious baby looked different, she had an extra finger and toe on each of her hands and feet. At 3 days, she was rushed to primary children's hospital by ambulance for an emergency surgery, after that we were sat down and we were told she had a very rare genetic syndrome. 3 and a half years later, we had our sweet boy. He also had complications and the same syndrome. Bardet-biedl syndrome.
I am a special needs mother.
I have felt many emotions as I'm sure every other special needs mother feels. I have felt lonely, guilt, terrified, grief, inadequate, a failure, helpless, sad, pain, & hopeless. But Being a special needs mother is also so joyful, and humbling. In this journey, I have meet some of the most wonderful and selfless mothers of special needs children. I have so much admiration for them. There is something so special about these children that brings out the best in us and gives us compassion, patience, and endless love. We all give each other hope.
So this Mother's Day I give you and myself permission to be proud of all we are.
Say no. feel,laugh, & cry. You don't have to hold it all together for anyone and put on that mask of a smile. Wear your superhero cape for a day and be proud that you got up and got yourself out of bed and faced another day! Hug your children and know how much they love you!
I give us permission to stop feeling guilty that we haven't done enough, because we have done more than we can imagine in the life's of these special children.
Tuesday, March 31, 2015
|Savannah was just glowing on her baptism day! She was so excited, and so happy! I can't believe how grown up she looks!|
|Sorry I have these pictures all out of order but these are ones of me getting Savannah ready before the baptism!If you ever wonder how I get Savannah to let me do her hair, I give her the I pad. It works!|
|Last minute, the day before I decided I wanted to have her baptism pictures out so I threw together this! When Savannah got home from school and saw it she was so excited! She loves the pictures of her and Addison!|
|Savannah and grandma Jensen! Grandma and papa jensen came out from Missouri for Savannah's baptism and Addison's blessing.|
I am so proud of my beautiful Savannah. I know that she is a child of God and I also know that she knows it too!
|Savannah was super excited to help put invitations is envelopes!|
The answer to all of those is probably/ most likely not but we don't know to all that she understands. Hopefully one day we will know more.
In our church, when you are eight you are old enough to make your own decision to be baptized. When you are eight you are accountable and know right and wrong and have a good concept of who God is.
I want my children to have their own testimonies/ to have faith and to know what they believe in. I want them to know what promises they are making to Heavenly Father when they are being baptized and why we take the sacrament and renew our convents each week and what it all means.
|This is when us girls went and picked out Savannah's Baptism dress! She was so happy!!|
Thursday, March 26, 2015
These are some pictures of Addison in her blessing dress! She wasn't in the best of moods but I just love them! I know it's not the norm but Addison is wearing the same dress that Savannah was blessed in.