Tuesday, September 7, 2010
I have really good news! When called the G. I. specialist today there was a cancellation! We are going to the G. I. specialist at Primary Children s on Thursday! I am so thankful! I took Xander to his eye appointment to Mayran Eye Center at the Primary children s in Riverton today. He looks good, but they weren't expecting to see anything until he's older anyway. Their eye doctor has actually seen a few children with BBS. He gave me some more information about it and I asked him what I can expect with Savannah and he told me that Savannah is really too young to tell anything yet. The next step for her will be glasses, but hopefully not for a year. I didn't realize that there are more than one type of eye diseases that people with BBS can have. We just have to wait to find out what she will have, but he also told me that there is no cure for any of these degenerative diseases. One of the hardest things with BBS for me is that everything is a waiting game. I really wish that I could just have a doctor tell me everything that will be wrong with my children. I hate not knowing, and then also knowing that there's nothing that I can do. I don't know what to prepare myself for, so I always seem to think of the worse possibilities. Knowing the worse of what can happen is so scary. Thank you everyone for your thoughts and prayers, and I'm am so thankful for those of you who had fasted for Xander on Sunday. I can't even describe how thankful I am. It hurts me so much watching Xander go through all of the pain and not being able to do anything for him, but hold him in my arms and tell him that he's going to be okay. Now, I can only pray that they will be able to find out what is wrong with him, and be able to fix it.