The Global RARE Genes Project is committed raising support and awareness of Rare diseases around the world. RARE stands for, Rare disease Awareness, Research and Education. Did you know that there are over 7,000 rare diseases that exist and it is estimated that 50% of people affected by rare diseases are children, which makes rare diseases one of the most deadly and debilitating for children worldwide.
Yes, RARE is everywhere and unity creates HOPE. Hope for cures in our Children's futures. The Global Genes Project promotes the needs of the rare genetic disease community and has giving us the blue denim ribbon as a unifying symbol of hope. Volunteers are making 7,000 individual blue bracelets of hope to show their support for people suffering from rare diseases. The number 7,000 represents the 7,000 rare diseases that impact every 1 in 10 people globely.