Sunday, February 17, 2013

Rare Disease Day!

 As you know, Savannah and Xander have a very rear disease, Bardet-Biedl Syndrome. Rare Disease Day February 28th. We will all wear our Two Little Reasons Shirt and blue ribbons, blue jeans,  and bracelets to show our love and support of our two beauitful rare children.  I hope that everyone will also wear jeans also to help spread awareness of rare diseases that many children and adults are living with, such as theirs. I want to spread HOPE and LOVE for these precious angels in our lives.

HOPE is in their GENES!!!

It's a good thing that you can't see what they are laughing at! I'm behind the camera jumping up and down, playing peek-a-boo with my scarf and making dinosaur sounds for Xander. :) It was so worth it!

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